Little young man playing with his mother.
The son of Haryana Police Constable, who is struggling with the world’s most dangerous disease, will be one year old on 9 October. Hopefully, on the first birthday, he gets a gift of a long life. This gift is nothing but Rs 9 crore coming from Switzerland.
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This injection will not be less than a Sanjeevani herb for a young man struggling with Spinal Muscular Atrophy (SMA) type-1. Around 7 crore rupees have been raised with the help of people. Now there is a shortage of two crore rupees. This month, 4 more districts of districts will pay 1-1 days of salary for the treatment of the child.
Let me tell you that Jollengesma injection is to be sourced from the city of Geneva, Switzerland to treat the disease of Yuvansh. The earlier price was Rs 14.50 crore. The only treatment for this disease is gene therapy, for which this injection is necessary. Yuvansh’s father Rajesh Kumar is a constable in the cyber branch of Fatehabad, while mother Kiran is a clerk in the Food and Supply Department in Fatehabad itself.
File photo of little youth.
Now know… Who came forward to help
Could not raise so much money even if you sell everything Yuvansh’s father Rajesh Kumar told in a conversation with Dainik Bhaskar app that the price of injection was Rs 14.50 crore when he started struggling to save the son’s life. We are unable to raise such a huge amount by selling everything. He used to cry day and night looking at the small child.
The young man is playing on his father’s lap and playing.
When crowd funding started then hope started to awaken We started crowd funding to save the life of the son. Dainik Bhaskar app But when the story of the young man came, people started coming forward to help. Due to which the help was done, people started doing. Initially, such a huge amount looked like a mountain for us. Gradually the gap started to be fixed.
Policemen of 18 districts paid 1-1 day salary Policemen of 18 districts of the state have also voluntarily paid one day salary to help the youth. Out of 22 districts of the state, police personnel from the remaining 18 districts except Karnal, Kurukshetra, Ambala and Yamunanagar paid one day’s salary. Father Rajesh hopes that this month’s salary will also help the policemen of these four districts.
Bar code built by constable Rajesh for financial assistance.
Vij gave 20 lakhs among ministers Politicians have also helped a lot as a grant to help the youth. The biggest help was from the Transport Minister Anil Vij. He gave a grant of 20 lakh rupees. Urban Local Bodies Minister Vipul Goyal has given a grant of 9 lakhs, Cooperative Minister Arvind Sharma 5 lakh, tourist minister Rao Narbir Singh has given 5 lakh rupees, Panchayat Minister Krishna Lal Panwar has given 5 lakh, PWD Minister Ranbir Gangwa and Sports Minister Gaurav Gautam have given a grant of Rs 2-2 lakh.
Governor’s office to social organizations helped Apart from this, 5 lakhs have been assisted by the Governor’s Office and Rs 5 lakh by former minister and MLA from Hisar Savitri Jindal. The remaining amount has been raised through social organizations, social workers and personal cooperation. The employees of Yuvansh’s mother Kiran Food and Supply have also contributed.
Photo of young man with mother Kiran and father Rajesh.
Expectation increased if the price of injection decreases The price of injection is around Rs 14.50 crore. Father Rajesh says that the injection manufacturer was talked to the company and the whole thing was told. It was also told that crowd funding is being done. After this, the company agreed to give this injection for around Rs 9 crore. 7 crore rupees have been raised through crowd funding. Now only 2 crore rupees are needed. As soon as 2 crores is collected, he will get an injection from Geneva.
Now know …. Youth has a disease in which the body does not grow
- Son was born on 9 October 2024: Rajesh said that he was married on 23 April 2023 with Kiran of village Sandalana in Barwala area of Hisar district. There was a son on 9 October 2024, named Yuvans. When the young man turned two months old, he was not doing activity like normal children. He showed a bone specialist in Hisar. The first doctor said that everything is fine, there will be a little late development.
- Voices started coming in the son’s chest: Rajesh told that two-three months and the voice started in the son’s chest. After this, another doctor of Hisar was shown and some improvement took place in a month. Also kept admit in the hospital for a week. This led to more improvement. But when he showed the doctor again, he advised to show the Higher Center at PGI or AIIMS.
The young man’s mother exercised her.
- PGI sent if SMA test done: After this, in the month of May, he was shown in another private hospital in Hisar, then the doctor got the SMA test done. The report of the Test on 18 May received a spinal muscular atrophy type-1 disease. The doctor suggested that Chandigarh starts treatment in PGI or AIIMS.
- PGI taken on May 22: Rajesh told that on 22 May he went to Dr. Renu Suthar in PGI. Dr. Renu said that neurons are formed in the spinal cord. Cells are formed from these neurons, which grow the body. Neurons are not formed in case of SMA disease. The body does not grow when neurons are not made. The body dries up.
- It is necessary to get injected by the age of two: Dr. Vinita Jain, a pediatrician at Aadhaar Hospital of Hisar, says that it is necessary to get this injection done by the age of 2 years. Everyday the disease increases. Therefore it is necessary to get immediate injection. After the injection, treatment will continue for two to three months.
